What Is Hemophilia?
- Hemophilia is a rare genetic bleeding disorder that affects approximately one in every 10,000 live births. It’s estimated there are around 400,000 people with hemophilia worldwide.
- Of these, 70% have little access or no access to care; only 115,000 have even been diagnosed.
- Hemophilia is caused by a missing protein in the blood. Hemophilia causes prolonged bleeding, and if left untreated, leads to joint deformities, agonizing pain, brain damage and in some cases death.
- Half of all people with severe hemophilia in developing countries die before age 10.
- Hemophilia is easily managed with injections of commercial blood-clotting medicine called factor.
Hemophilia in Nepal
- Only 552 of the estimated 3,000 people with hemophilia are diagnosed.
- The Nepal Hemophilia Society was founded in 1992.
- Two central care units located in Central Kathmandu.
- Six local chapters are located in different parts of Nepal.
- Access to factor is limited and reliant entirely on international donations.
- Prophylactic or preventative treatment is not available.
- Save One Life offers direct, monthly financial aid to 80 families with hemophilia.
- Five community members died in the 2015 earthquake; almost 60 lost all or parts of their homes.
- Save One Life has been the only hemophilia organization to visit Nepal post-earthquake to assess the impact.
Everest is the ultimate physical challenge, where climbers come to test their skills and courage. Chris’s and Believe’s draw to Everest is more than just about the physical challenge, it’s about Nepal and its people with hemophilia. Nepal’s hemophilia community represents one of the most challenging struggles of the hemophilia community worldwide, just as Everest represents humankind’s toughest climb.